The 12 topics addressed by the Belgium 1+MG Mirror Group are listed below and the primary scope is indicated between brackets:
- Maturity model
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Maturity model to guide the implementation / Sustainability recommendations/Access to data for research (policy-support, lab-technical, clinical, population-health, ICT, ethics-legal, economics/finance).
Participants:
Hélène Antoine-Poirel, Belgian Cancer Registry, BCR, Brussels
Miikka Vikkula, Catholic University Louvain (UCLouvain) / de Duve Institute, Leuven
Roberto Salgado, GZA-ZNA Hospitals, Antwerp
- Ethical, Legal, and Societal Issues (ELSI)
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Ethical, Legal, and Societal Issues (ELSI) - Minimum recommendation on ELSI and data protection (policy-support, ethics-legal)
Participants:
Romain Alderweireldt, Fondation 101 Génomes, Brussels
Pascal Borry, The Catholic University of Leuven ( KU Leuven), Leuven
Jean-Marc Van Gyseghem, University of Namur / Research Centre Information Law and Society, Namur
Wannes Van Hoof, Sciensano, Brussels
- Clinical and phenotypic data
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Clinical and phenotypic data requirements / development of standards for clinical interpretation (lab-technical, clinical, population-health)*
Participants:
Valérie Benoit, Institute of Pathology and Genetics (IPG), Charleroi
François Dufrasne, Université de Mons (UMONS), Mons
Katrien Janssens, Center of Medical Genetics Antwerp, Antwerp
Bart Loeys, Antwerp University Hospital, Antwerp
Yves Sznajer, Cliniques universitaires Saint-Luc, Brussels
Miikka Vikkula, Catholic University Louvain (UCLouvain) / de Duve Institute, Leuven
Wim Wuyts, Antwerp University Hospital / Department of medical genetics, Antwerp
- Good sequencing practice / standards on data quality
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Good sequencing practice / Minimum standards on data quality and analysis plus data challenges (lab-technical, clinical, population-health, ICT)*
Participants:
François Dufrasne, Université de Mons (UMONS), Mons
Pierrick Moreau, Institute of Pathology and Genetics (IPG), Charleroi
Arvid Suls, The University of Antwerp (UAntwerp), Antwerp
Sonia Van Dooren, University Hospital Brussels (UZ Brussel), Brussels & Vrije Universiteit Brussel (VUB), Brussels
Kevin Vanneste, Sciensano, Brussels
Frederic Vauthier, Institute of Pathology and Genetics (IPG), Charleroi
Joris Vermeesch, The Catholic University of Leuven ( KU Leuven), Leuven
- ICT
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Federated secure, interoperable framework (lab-technical, clinical, population-health, ICT)
Participants:
Jos Bellens, University Hospital Brussels (UZ Brussel), Brussels
Frederik Coppens, ELIXIR, Ghent
Catharina Olsen, University Hospital Brussels (UZ Brussel), Brussels
Erika Souche, UZ Leuven, Leuven
Geert Vandeweyer, The University of Antwerp (UAntwerp), Antwerp
- Health economics
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Health economics and outcome research/ Economic models (policy-support, clinical, population-health, ethics-legal, economics/finance)*
Pieter-Jan Stiers
- Stakeholders
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Stakeholders outreach (policy-support, lab-technical, clinical, population-health, ICT, ethics-legal, economics/finance)
Participant:
Romain Alderweireldt, Fondation 101 Génomes, Brussels
Gert Matthijs, The Catholic University of Leuven ( KU Leuven), Leuven
- Case : Rare Diseases
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Use case - Rare diseases (lab-technical, clinical, population-health, ethics-legal)*
Participants:
Romain Alderweireldt, Fondation 101 Génomes, Brussels
Karen Colaert, Vlaams agentschap Zorg en Gezondheid (ZG), Brussels
Karin Dahan, Institute of Pathology and Genetics (IPG), Charleroi
Elfride De Baere, Ghent University & Ghent University Hospital (UZ Gent), Ghent
Charlotte De Vogelaere, Sciensano, Brussels
François Dufrasne, Université de Mons (UMONS), Mons
Bart Loeys, Antwerp University Hospital, Antwerp
Frank Kooy, The University of Antwerp (UAntwerp), Antwerp
Geert Mortier, Antwerp University Hospital, Antwerp
Emile Van Schaftingen, Catholic University Louvain (UCLouvain), Leuven
Miikka Vikkula, Catholic University Louvain (UCLouvain) / de Duve Institute, Leuven
- Case : Cancer
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Use case : Cancer (lab-technical, clinical, population-health, ethics-legal)*
Participants:
Hélène Antoine-Poirel, Belgian Cancer Registry, BCR, Brussels
Vincent Brours, University of Liege, Liege
Jurgen Del Favero, Histogenex, Antwerp
Thomas Delcourt, Sciensano, Brussels
Christine Desmedt, The Catholic University of Leuven ( KU Leuven), Leuven
Barbara Dewaele, University Hospital Leuven (UZ Leuven), Leuven
Ann Gils, Stand up to Cancer (Kom op Tegen Kanker), Brussels
Olga Kholmanskikh, Federal Agency for Medicines and Health Products (FAMHP), Brussels
Brigitte Maes, Jessa Hospital, Hasselt
- Case : Personalised prevention/population based sequencing
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Use case : Personalised prevention/population based sequencing/genetic variation, pharmacogenomics and common and complex diseases (lab-technical, clinical, population-health, ethics-legal)*
Participants:
Charlotte De Vogelaere, Sciensano, Brussels
Gokhan Ertaylan, VITO, Mol
Michel Georges, University of Liege, Liege
Lies Lahousse, Ghent University, Ghent
Csilla Sipeky, UCB, Brussels
Rosa Rademakers, VIB & University of Antwerp (UAntwerp), Antwerp
Freya Vaeyens, University Hospital Brussels (UZ Brussel), Brussels
Kristel Van Steen, University of Liege, Liege
- Case : Covid
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Use case : Covid (lab-technical, clinical, population-health, ethics-legal)*
Participants:
Lize Cuypers , University Hospital Leuven (UZ Leuven), Leuven
Thomas Delcourt, Sciensano, Brussels
François Dufrasne, Université de Mons (UMONS), Mons
Sofieke Klamer, Sciensano, Brussels
Marie Lesenfants, Sciensano, Brussels
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